{"id":13,"date":"2026-02-28T09:00:00","date_gmt":"2026-02-28T08:00:00","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/?p=13"},"modified":"2026-02-28T09:00:00","modified_gmt":"2026-02-28T08:00:00","slug":"strategic-partnership-with-who-for-orphan-disease-access","status":"publish","type":"post","link":"https:\/\/amyloidosisalliance.pacom1.com\/?p=13","title":{"rendered":"Strategic Partnership with WHO for Orphan Disease Access"},"content":{"rendered":"<p class=\"wp-block-paragraph\">New initiative aims to streamline the procurement of rare disease treatments in developing member nations and reduce diagnostic delays globally.<\/p>\n<p class=\"wp-block-paragraph\">The partnership will focus on three priorities: simplifying regulatory pathways for orphan drug access, training frontline healthcare workers to recognize early symptoms, and building a shared data infrastructure to track outcomes across participating countries.<\/p>\n<p class=\"wp-block-paragraph\">The Alliance&#8217;s policy team will coordinate with national member associations to ensure the initiative reflects the realities faced by patients in each region.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>New initiative aims to streamline the procurement of rare disease treatments in developing member nations and reduce diagnostic delays globally.<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-13","post","type-post","status-publish","format-standard","hentry","category-policy-advocacy"],"_links":{"self":[{"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=\/wp\/v2\/posts\/13","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=13"}],"version-history":[{"count":0,"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=\/wp\/v2\/posts\/13\/revisions"}],"wp:attachment":[{"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=13"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=13"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/amyloidosisalliance.pacom1.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=13"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}