26 October 2026
World Amyloidosis Day
One day, one message: Be the Link. Every 26 October, patients, caregivers, healthcare professionals and patient organisations across the world unite to make amyloidosis known — and diagnosed sooner.
Why this day exists
Four years to be diagnosed
Amyloidosis is a rare, complex and multifaceted disease which is barely known — even among healthcare professionals. There is no single symptom that points to it: the disease takes many forms, depending on which protein misfolds and accumulates in the organs, and it can affect the heart, the kidneys, the digestive system or the nervous system in very different ways.
Because those symptoms mimic far more common conditions, patients often consult several specialists before anyone names the disease. On average, it takes four years to reach a diagnosis — four years during which the damage caused to the organs is often irreversible, and sometimes fatal.
World Amyloidosis Day exists to close that gap. Every 26 October, the international community comes together with one goal: faster diagnoses and better quality treatment, through greater awareness of the disease among the general public, patients and the medical world alike.
4 yrs
Average diagnostic delay
30+
Types of amyloidosis
6th
Edition in 2026
26 Oct
World Amyloidosis Day
The campaign
Be the Link
The strongest bond is human, so let’s work hand in hand. Patients, caregivers, healthcare professionals, industry and institutions: everyone is a link in the amyloidosis chain — and every link makes an earlier diagnosis more likely.
Link patients & experts
Bringing people living with amyloidosis face to face with the clinicians and researchers who can recognise it early.
Link countries
Uniting patient associations across the world under one shared voice and a single day of action.
Link science & lived experience
Turning research progress into answers that patients and families can actually use.
Take part
The campaign kit
Everything your association needs to carry World Amyloidosis Day in your own country: the guide to organising your event, the graphic identity, the infographics and the visuals of the previous editions.
Activation kit
Organise your local event
A 40-page guide: event ideas on site or online, the social-media playbook — hashtags, filters, good practices — press outreach and a month-by-month timeline. Includes the t-shirt artwork.
Brand
Graphic identity & logos
The World Amyloidosis Day logo in every format, plus the colours, the typefaces and the rules for using them.
Education
Infographics
The disease, its forms and the road to diagnosis, explained in a handful of shareable images.
SOCIAL
Social network posts 2026
Ready-to-post visuals for Instagram, Facebook, LinkedIn and X, sized for each network and available in several languages.
POSTERS
Posters 2026
Printable posters for waiting rooms, hospitals, pharmacies and association venues.
Video
Interviews & replays
Doctors, patients and associations on camera: the interviews recorded for the campaign, plus the replays of the live sessions.
Previous years
Visuals 2021 → 2025
The social media visuals, flyers and posters of the earlier editions, still usable all year round.
All the material is available in different versions and languages, depending on the country and the member association you are looking for. Contact your local organisation or the Alliance directly to obtain them.
Press room
Dear journalists, this page is for you
For further information, for the press kit, or for an interview with a World Amyloidosis Day spokesperson, a patient or a medical expert in your country, fill in the form and the Alliance will get back to you.
Amyloidosis has already been covered by the national and regional press in a dozen countries — from daily papers and radio to health magazines and television.
- The World Amyloidosis Day press kit and campaign visuals
- An interview with a spokesperson of the Alliance, in your country
- A patient or a caregiver willing to share their story
- A medical expert on amyloidosis, for background or on the record
