The Alliance
The team
The Amyloidosis Alliance is led by a dedicated board of members, supported by an expert scientific committee, and strengthened by working groups that contribute to advancing its mission through collaboration and shared expertise.
Board members
Elected representatives from our member associations, the board sets the strategic direction of the Alliance and ensures accountability to the global patient community.
President
Giovanni d’Alessio
Secretary
J.C Fidalgo
Treasurer
David Gregory
Board member
Catilena Bibiloni
Permanent staff
Executive team
The permanent secretariat that coordinates day-to-day Alliance operations, supports the board, and drives implementation of the annual work plan.
Executive Director
Pascal Combes
Project manager
Emmanuel Jammes
Digital communication manager
Manon Dibatista
Operational structure
Working groups
Four thematic groups bring together volunteers from member associations to deliver the Alliance’s mission streams, each with clear annual objectives.
Awareness
Coordinating World Amyloidosis Day and year-round campaigns to raise the profile of the disease among patients, clinicians, and policymakers.
Resources
Producing and maintaining the multilingual library of validated patient guides, clinical tools, and educational materials.
Member relations
Supporting member associations, facilitating peer exchange, and managing the onboarding of new organisations to the network.
Events
Supporting collaboration and engagement through events that bring together patient organizations, healthcare professionals, researchers, and partners worldwide.