Audience at an international amyloidosis congress

Events

Our two flagship events

Two moments bring the international amyloidosis community together every year: World Amyloidosis Day, our global awareness campaign, and the AL / ATTR International Meeting for Patients and Doctors, where patients and clinicians meet face to face.

Save the date

Two events, one community

One brings the whole world together on a single day of awareness; the other brings patients and doctors into the same room. Both exist for the same reason: shortening the road to diagnosis.

World Amyloidosis Day campaign key visual

Awareness campaign

Every 26 October · Worldwide

World Amyloidosis Day

One day, one message: Be the Link. Patients, caregivers, healthcare professionals and patient organisations from every continent unite to make amyloidosis known — and diagnosed sooner.

International Amyloidosis Meeting for Patients and Doctors

International meeting

September 2027 · London

AL / ATTR International Meeting

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Awareness campaign · 26 October

World Amyloidosis Day

Amyloidosis is a rare and multifaceted disease which is barely known — even among healthcare professionals. Because its symptoms mimic far more common conditions, it takes four years on average to reach a diagnosis: four years during which the damage caused to the organs is often irreversible.

World Amyloidosis Day exists to close that gap. Every 26 October, the international community comes together under one campaign — Be the Link — with medical conferences, concerts, open lectures, press campaigns and patient meetings held in dozens of countries.

Discover the campaign’s story, the actions taking place around the world, and how your organisation can take part in the next edition.

Four people — a doctor, a patient, a young man and an older man — connected by a single orange thread

International meeting · September 2027

AL / ATTR International Meeting for Patients and Doctors

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Speakers at the 5th International Amyloidosis Meeting for Patients and Doctors, Italy