Our mission is pursued through advocacy, active engagement in public policy-making, and oversight of the healthcare system, in close collaboration with institutions such as the National Health Superintendency, the Office of the Inspector General, the Ombudsman’s Office, and the Ministry of Health.
Colombia
FUNCOLEHF — Fundación Colombiana para Enfermedades Huérfanas
La Fundación Colombiana para Enfermedades Huérfanas (FUNCOLEHF) is a nonprofit foundation dedicated to improving the quality of life and life expectancy of people and families affected by rare diseases, including Amyloidosis. We work hand in hand with scientific societies, decision-makers, and advocacy groups across Colombia, backed by international alliances.