The XIX International Symposium on Amyloidosis: A Landmark Event in Rochester, MN
From Sunday, May 26 to Thursday, May 30, 2024, the city of Rochester, MN hosted the XIX International Symposium on Amyloidosis. This prestigious event, a blend…
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Research advances, patient stories, policy work and news from the associations of the Alliance network.
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Raising awareness for Amyloidosis: a collaborative event in Switzerland
On May 17th, 2024, the Centre Hospitalier Universitaire Vaudois (CHUV) and the Hôpitaux Universitaires de Genève (HUG) hosted a pivotal afternoon dedicated to amyloidosis. This event…
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Understanding Amyloidosis Symptoms: Why Early Diagnosis is Crucial
Did you know that the symptoms of amyloidosis can often mimic those of other conditions, leading to misdiagnosis and delayed treatment? Amyloidosis is a rare disease…
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A new study published about Hereditary Transthyretin Amyloid Polyneuropathy
The study published in the Annals of Neurology, titled “Disease-Modifying Drugs Extend Survival in Hereditary Transthyretin Amyloid Polyneuropathy,” sheds light on the effectiveness of treatments for…
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The Vital Role of Healthcare Professionals in Amyloidosis Management: Amyloidosis Alliance Leading the Way
In the intricate landscape of healthcare, certain conditions demand specialized attention and collaborative efforts for effective management. Amyloidosis, a rare yet complex disorder characterized by the…
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Join the Amyloidosis Alliance: Uniting Patient Associations Globally to Fight Amyloidosis
Amyloidosis is a rare and complex group of diseases that occur when abnormal proteins, called amyloids, build up in tissues and organs. It can affect various…
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Join Us at the XIX International Symposium on Amyloidosis in Rochester, MN
Join Us at the XIX International Symposium on Amyloidosis in Rochester, MN We are thrilled to announce that the Amyloidosis Alliance will be gathering at the…
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Honoring the unsung Heroes: caregivers in the Fight Against Amyloidosis
In the realm of rare diseases like Amyloidosis, caregivers stand as pillars of strength, compassion, and support. Their unwavering dedication and selflessness often go unnoticed amidst…
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Unveiling Breakthroughs: the 1st International AL Amyloidosis congress in Belgium
In the realm of medical advancements, every breakthrough holds promise, especially for those grappling with rare diseases. The 5th and 6th of July, Belgium becomes the…