What is a clinical trial ?
Find out the answer to these questions and take part in a quiz to test your knowledge about clinical trials. Training page (available in French and…
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The Amyloidosis infographic
Amyloidosis : a disease that concerns adults at any age . Find out more about it with these infographics ⬇️ ✅ 4 types of Amyloidosis 4 years…
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READ AMY’S DISEASE STORY , diagnosed at 52
I was diagnosed with Amyloidosis in 2018, age 52, following several years of visits for symptoms that couldn’t be explained. I knew something was wrong but…
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The Alliance E-learning : test your knowledge
When the diagnosis is made, the first reflex is often to go on the internet to find out more about Amyloidosis. Test your knowledge of amyloidosis…
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Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients
Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients According to a Spanish study, people with hereditary transthyretin amyloidosis (hATTR) may develop eye problems…
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A Tv program about Crispr Cas-9 in Sweden
This program is called “Fråga Doktorn” (Ask the Doctor) and is broadcast in Sweden.Each week there is always a special topic that is covered and this…
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Rare disease day
Today is RARE DISEASE DAY!!! Amyloidosis is one of them and we are doing everything we can to support the event and this fight against rare…
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hATTRs impact caregiver health-related quality of life
Caring for a person with hereditary Transthyretin amyloidosis (hATTR), has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reported. Read this…
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4th Meeting of the Amino association in Spain
15 February 2023 On-site: Puerta de Hierro University Hospital. Majadahonda, Madrid Also online from the official website event by clicking here It will be recording in…