Amylostory
Your story is unique
Amyloidosis invades lives and turns them upside down. Sharing yours will help someone. Here, everyone is free to talk about their life with the disease — in their own words and in their own language.
Browse the stories
People all connected by amyloidosis
Behind every statistic is a person. Each story below was written by a patient or a caregiver and is published in the language it was written in.
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Mon intruse
Read the full story →: Mon intruse56 ans. Je pensais enfin mener une vie tranquille, continuer de voyager, peut-être de trouver un nouveau compagnon…
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L’Amylose de ma vie
Read the full story →: L’Amylose de ma vieIl était une fois une enfant avec le seul souvenir l’hôpital, et seuls compagnons la fièvre et katty, la chatte.
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La Vie En Sursis
Read the full story →: La Vie En SursisDéclaration de la Maladie Mars 2018. Âge 62 ans. Voici mon récit sur mon Amylose Cardiaque AL.
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A good life but maybe not a long one
Read the full story →: A good life but maybe not a long oneI have hereditary amyloidosis. I got it from my dad who died at 74 who got it from his dad who died at 61.
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Mi Herencia Familiar
Read the full story →: Mi Herencia FamiliarNacer y vivir en Venezuela ha sido un verdadero honor, hijo de Eulogio R. D. y Justina O. L. con 49 años de edad soy el…
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Recomeçando a vida
Read the full story →: Recomeçando a vidaMe chama Leonardo Gomes tenho 63 anos, após um passeio no Canadá para nascimento do meu netinho.
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Amyloidosis is bad, but after reaching the bottom I found the good in it
Read the full story →: Amyloidosis is bad, but after reaching the bottom I found the good in itHi, I’m João Ferrão, 26 years, living in Caldas da Rainha, Portugal. I’m a Lead Product Designer at Talkdesk.
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Gerry’s Amyloidosis story
Read the full story →: Gerry’s Amyloidosis story“You’re just constipated. We’ll empty your bowels and send you home.“
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The Day My Life Changed
Read the full story →: The Day My Life ChangedIn April 2019, I had just returned from a girl’s trip to Las Vegas and was not feeling great.
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Lo mejor está en el camino… No tengas prisa en llegar a la meta
Read the full story →: Lo mejor está en el camino… No tengas prisa en llegar a la metaMe llamo Joel, nací en el 1972 y soy de Mallorca. A los 23 años, cuando hacía el servicio militar, empecé a encontrarme mal y no…
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Christmas 2014
Read the full story →: Christmas 2014Christmas morning on the most beautiful island that my family so dearly love – Stradbroke Island, Queensland Australia.
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It Doesn’t Really Matter
Read the full story →: It Doesn’t Really MatterWithout knowing it, I had been living with an uninvited menace in my body for some years.
Be the link
Share your story
Your account of the disease — how long it took to be diagnosed, what helped, what did not — is what makes the next patient’s road shorter. Write it in whichever language you are comfortable with.
