Call for testimonies on Amyloidosis
Dear members of our committed community, We need your testimonies for World Amyloidosis Day on 26 October! We are launching a major awareness campaign to highlight…
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication
Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication Amyloidosis is a rare but serious medical condition that affects a growing number of individuals worldwide. Despite its…
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Can Amyloidosis Be Cured?
Amyloidosis is a rare disease that affects a small number of people worldwide. It is a complex condition that can cause a range of symptoms, from…
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Important press release
Great news to share with the community !! This press release announces that the BioBridge laboratory will now be able to submit an approval dossier to…
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New hope of a cure for amyloidosis sufferers
Hereditary amyloidosis is a rare genetic disease. This disease is characterised by the unusual deposition of protein clusters in tissues, between cells, and often in the…
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Understanding amyloidosis: symptoms and diagnosis
Understanding amyloidosis: symptoms, diagnosis and outlook Amyloidosis is a rare disease affecting a limited number of people worldwide. Although little known, it can have a significant…
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Amyloidosis Progress
For almost 150 years after its discovery, amyloidosis was considered incurable. Historically, the complexity of the disease delayed research. Why invest time and money in research…
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Amyloidosis and physical activity
Amyloidosis is a rare disease that occurs when abnormal proteins build up in tissues and organs throughout the body. This build-up can lead to a variety…
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Cardiac amyloidosis is under-diagnosed
We have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it…