What is a clinical trial ?
Find out the answer to these questions and take part in a quiz to test your knowledge about clinical trials. Training page (available in French and…
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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The Amyloidosis infographic
Amyloidosis : a disease that concerns adults at any age . Find out more about it with these infographics ⬇️ ✅ 4 types of Amyloidosis 4 years…
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READ AMY’S DISEASE STORY , diagnosed at 52
I was diagnosed with Amyloidosis in 2018, age 52, following several years of visits for symptoms that couldn’t be explained. I knew something was wrong but…
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The Alliance E-learning : test your knowledge
When the diagnosis is made, the first reflex is often to go on the internet to find out more about Amyloidosis. Test your knowledge of amyloidosis…
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Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients
Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients According to a Spanish study, people with hereditary transthyretin amyloidosis (hATTR) may develop eye problems…
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A Tv program about Crispr Cas-9 in Sweden
This program is called “Fråga Doktorn” (Ask the Doctor) and is broadcast in Sweden.Each week there is always a special topic that is covered and this…
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Rare disease day
Today is RARE DISEASE DAY!!! Amyloidosis is one of them and we are doing everything we can to support the event and this fight against rare…
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hATTRs impact caregiver health-related quality of life
Caring for a person with hereditary Transthyretin amyloidosis (hATTR), has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reported. Read this…
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4th Meeting of the Amino association in Spain
15 February 2023 On-site: Puerta de Hierro University Hospital. Majadahonda, Madrid Also online from the official website event by clicking here It will be recording in…